This is the text of my
presentation at a Canadian Institute for Health Research (CIHR) Café
Scientifique which was held on Thursday, March 20, 2014 at the Bloomfield
Centre in Halifax, Nova Scotia.
Many years ago, I met Michael
Charlie, an Indigenous boy with complex needs. He had muscular dystrophy and
used a wheelchair to get around the Glenrose Rehabilitation Hospital in Edmonton.
He was moved to the hospital in Edmonton from his home northern Alberta, to
live and get education in that institutional setting, away from his family,
culture and community. We played wheelchair basketball together and did his homework. I counted him as my friend. When I moved on, I made him a promise that he
would not be forgotten. I have tried to fulfill that promise in my research in
the years since.
For me, asking the question
“What does it take to make inclusion and access happen in challenging
contexts?” makes me wonder what would it have taken to include Michael Charlie
in his own community? What does it take to include disabled boys and girls,
young women and men in all of our communities? How do we address the everyday
challenging contexts of living with disabilities in a world created for and by
people without disabilities?